Yngvild Arnesen's PhD project
Collaboration partners: Monica Martinussen,Bjørn Helge Handegård, and Børge Mathiassen, UNN.
Collaborators in London, UK: Child Outcome Research Consortium (CORC)/ Evidence Based Practice Unit, University College of London, of which key collaborators are Professor Julian Edbrook-Childs and Dr Jenna Jacobs.
A collaborative project with the University Hospital of Northern Norway HF.
Patient-reported experience in child and adolescent mental health services. Aspects of patient’s mental health status and life situation as predictors of user satisfaction.
The data collection in the research project takes place at UNN HF, at one of six outpatient clinics for children and adolescents in the Department of Child and Adolescent Psychiatry (BUPA), and is part of a local quality register established in 2013/2014. Approximately 400 new patients are enrolled in the register annually with data from both the patient himself, relatives, clinicians and teachers/kindergarten staff in addition to information from the electronic patient record. Data is collected at start-up and at the six-month evaluation. In the register, the data quality is good at the start with 85-90% responses from relatives and clinicians, somewhat lower for teachers and patients. When evaluated at 6 months, the response rate is approximately 35 for parents, 18 for children/adolescents and 60 for clinicians.
The first article in the project deals with the validation of the Norwegian version of the user satisfaction form for young people and parents. Data from UNN is compared here with parallel data from a corresponding national register in England and the factor structure from the original version of the form is partially confirmed in the Norwegian version. Data is analysed, and the article is prepared for submission to a journal. In article two, we will look at whether background information (such as risk factors, diagnoses or symptom level) predicts individual variation in user satisfaction and is published in Health Expectations, see DOI 10.1111/hex.13861. The last article in the thesis will, using regression analysis, reveal whether we find co-variation between user satisfaction and patient-, relative- and/or clinician-reported change after six months of initiation. The article is under review at BMC Psychiatry.
We have collaboration regarding data collection and the article on validation with the professional community in London (see above).
This study was supported by "The National Program for Integrated Clinical Specialist and PhD-training for Psychologists" in Norway. This program is a joint cooperation between the Universities of Bergen, Oslo, Tromsø, The Norwegian University of Science and Technology (Trondheim), the Regional Health Authorities, and the Norwegian Psychological Association. The program is funded by The Ministry of Education and Research.
The data collection, storage of data and funds for operation of the register are financed by the University Hospital of Northern Norway, where Børge Mathiassen is the project manager.